Well folks, today a real letter was delivered through our letterbox - and addressed to my Tasha too! I had to wait for what felt like ages for her to wake as she is particularly unwell now - her ME has progressed from moderately severe to severe and so most of her time is spent in bed (or on occasion on a bed made on the sofa) and she is struggling to text or keep in touch with people even via the internet. Well - this letter was written by a fabulous volunteer who also suffers with severe ME, and enclosed with the letter was a hand-made card too. Receiving this gave my daughter, who feels so desperately low, alone and sick a huge boost and brought a lovely smile to her face as I read it out to her. These volunteers are such kind souls, writing such beautiful letters by hand and decorating them with little sparkles and messages of hope - full of understanding as they know exactly how she feels and what she is going through. It has made her feel a little less alone and part of a very special tribe. It has given her a ray of hope for improved health in the future and the knowledge that someone out there is thinking of her and has been kind enough to write to her and be a friend. Her sister Keisha has offered to write back at the weekend if Tasha dictates to her what she would like to say and enclose a little hand-made something back in return to repay the kindness. How wonderful would life be if more folk did acts of kindness like this? It has made me think and I am going to endeavour to do as many random acts of kindness that I can, as and when I can to try and spread a little happiness back.
PLUS - she received many monkey based gifts which she loves and I made her a vanilla and chocolate marbled monkey cake too :)
I am hoping that this weekend we can all just hide away and rest up. So I am planning to do some batch cooking tomorrow and get some comforting (healthy) foods in so we can snuggle and chomp away together in our pit and hopefully gain some strength for a good week next week (as I have optimistically booked us all haircuts as Mondays are the quietest days at our hairdresser, so perfect for the girls if I can get them there. Thank goodness for blue badges & wheelchairs - we can park directly outside, scurry in, have a chop and scurry out again).
Wishing you all the best weekend possible.